Who Are You?

I talk a lot about the things we deal with as a family without any context. So I thought I’d take this time to introduce our tiny little family.

My husband and I met at Staples in 2017, we started dating at the end of November 2017 and then got married April 3rd, 2018. I don’t like to waste time and when you know, you know. We found out we were pregnant at the end of June 2018. Again, we don’t waste any time.

Our daughter was born on February 26th, 2019 after mama was admitted and induced for a random pop of high blood pressure that refused to go back down. After a pretty uneventful labor, the doctor was concerned with Georgia’s heart rate dropping every time I had a contraction. So, C-Section it was. She was beautiful and mama was tired, but Georgia Ann had entered our lives with some drama!

24 hours later they were taking her to the NICU due to a heart murmur and narrowing of her aorta. Such a scary moment for a brand new mom. The stress and anxiety was so high. A few days pass and we get sent home. Thankfully she was ok, but we had an appointment with Cardiology in a few weeks.

Basically, she had a narrowing of her left aorta and three VSDs in her heart. We were followed by cardiology every month for a few months, then we went to once a year. A lot of things were thrown out, like surgery, but ultimately we decided to let it run its course. Thankfully, one of the VSDs has closed, the other two aren’t affecting her blood flow, and the narrowing has gotten a tiny bit better, so YAY!!

If only that was it.

Georgia didn’t start walking unassisted until she was 2, and even then she was incredibly unbalanced. She has a tilt in her head that we thought was because we were bad at giving her tummy time. She also sits too close to the TV and doesn’t respond to a lot of sounds. So the stress and anxiety just continued.

Turns out: Georgia has a fusion of two of her vertebrae in her neck that’s causing the tilt, she also has Bilateral Sensorineural Hearing Loss causing her to wear a hearing aid on her left ear, and there’s some concerns with her vision and what her brain is actually comprehending. By the age of three she’s had ear tube surgery, eye surgery, multiple sedations for ABR’s and MRI’s, countless blood draws, a doctors appointment almost every month, and she started school the spring after she turned 2. Currently, we’re working on speech and finding a way for Georgia to communicate easily. And that’s just what we know now.

It always seems like there’s something else. Just when one thing gets worked out or worked on, we get sent to another doctor or specialist. As of this writing, we have an evaluation for CVI and were referred to Nephrology. It’s never ending.

When I’m in the middle of these moments it’s so hard to see the good in the situation. It’s hard to push past the feelings of frustration when you get a smidge of good news followed by “I need you to go see…”. It’s hard to see the good when you get news that the genetics testing came back inconclusive and there seems to be NO REASON why Georgia is dealing with any of this. I can’t begin to explain the nights filled with tears and desperate prayers.

We try to see the happy. Georgia is the sweetest little thing. She loves everyone she comes in contact with and is the biggest social butterfly. Not sure where that comes from because mama and daddy are not. She’s usually really happy! Doesn’t let a lot of things to bother her, especially the multiple doctors appointments and the frustration of trying to communicate when she can’t.

We are coming to terms with the fact that this is Georgia and we might never get an “answer” as to why she was chosen to deal with these things. We are coming to terms with the fact that we have to trust in God and his plan, because ultimately it’s perfect. While we don’t have any tangible answers, we have God and his perfect plan.

But he said to me, “My grace is sufficient for you, for my power is perfected in weakness. Therefore, I will most gladly boast all the more about my weaknesses, so that Christ’s power may reside in me. So I take pleasure in weaknesses, insults, hardships, persecutions, and in difficulties, for the sake of Christ. For when I am weak, then I am strong.

2 Corinthians 12: 9-10

This verse gets me through those moments of uncertainty, the moments where the burden is too heavy, the moments where I can’t seem to get off the floor or out of bed. God has a plan for our little family, and while it’s overwhelming and difficult, it’s perfect.

I hope this gave you a little insight into my life. It’s just the basics, there’s a lot more to talk about… but we’ll do that at another time. Thanks for reading and praying for me and my family, we all really appreciate it.

With Light and Love,

Eli Morr

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